User-centred Healthcare Design National Institute for Health Research logo

Family Support Groups

During the Diabetes project UCHD has engaged with two support groups for the families of young people with type 1 Diabetes from Rotherham and Barnsley.

We had met both groups separately in the early stages of developing our Diabetes case study and decided to bring them both together to form the principal participants in our service design project in July 2011. This has not only helped us develop some exciting design concepts but also brought the two groups of families closer together.

Both support groups have participated in a series of creative workshops to help us design an innovative new support and information service to assist young people in self-managing their diabetes:

Rotherham Young Diabetes Association (RDYA)

RYDA is a group of families of children with type 1 Diabetes in Rotherham, South Yorkshire. Parents, carers and young people meet monthly to support each other in living with type 1 Diabetes. They also organise regular outings to have fun and socialise together. RYDA is coordinated by volunteer parents.

RYDA have a website: http://www.ryda.org.uk

Parents and Carers of Children with Diabetes Support Group, Barnsley

This group of parents and carers of children with type 1 Diabetes are based in Barnsley, South Yorkshire. They meet regularly to support each other in living with type 1 Diabetes, and are coordinated by volunteer parents. The families’ young people do not typically attend their meetings although, since becoming involved in our design project, they have since met other young people living with type 1 Diabetes in both Barnsley and Rotherham.

Project updates

Diabetes Dragons’ Den
...a creative workshop based on the television programme Dragons’ Den but with a twist!

Diabetes project update
The team spent an enjoyable evening with two South Yorkshire family support groups for young people with type 1 Diabetes...

Fazilatur attends a DAFNE course
Fazilatur attended a DAFNE (Dose Adjustment for Normal Eating) course, as an observer, from 18 - 22 October 2010 and gained an insight into the huge impact type-1 diabetes can have on a person's life.

Meeting RYDA
Dan, Fazilatur, Simon and Remi went to meet RYDA to talk about UCHD and listen to their experiences.

DAFNE course attendance
Pete and Simon have attended a one-week DAFNE course and listening and talking to people on the course gave us plenty of insights into what it is like living with type 1 diabetes.

Project downloads

There are currently no downloads for this project. Please keep checking the site. Downloads and resources will be added as the project progresses.